My life couldn’t have changed more in the two months since I posted last.
It started with a respiratory infection. In May. GP sent me for my first COVID test (negative) and then sent me home to sweat it out. Three weeks later, I was still coughing and I agreed to a tele-conference. The Doc heard me coughing and prescribed asthma medicines. He was of the opinion that my asthma had been “turned on” by the bushfires earlier in the year, and was now being exacerbated by wood smoke from cosy winter fires.
Six weeks of serious coughing ensued. The Doc asked me to count the average number of times I coughed during a minute–which was six times when the bout was particularly fierce. And how many hours per bout. Some days that would be six or seven hours. Another tele-conference and two live appointments, different medicines and different regimes of when to take them didn’t throw any light on the matter. Because, since my lungs were clear, it had to be asthma.
In the first week of September, maybe, I decided in my dull, sick state of mind I should get a second opinion. To be able to have my blood tested–I had to go for another COVID test as local clinics refused clients with any symptoms of COVID. My second-opinion doctor rang me as soon as he had the results on his computer, on a Sunday, and convinced me to come into the surgery the next day on Monday 14th September.
“Your blood doesn’t look very good,” he said. “Anemia and probably malnutrition are only two of your problems.” He organized for me to be admitted to hospital in Queensland. A friend drove me–the border crossing was a mess of detours and a long conference with the police charged with keeping the border safe.
In hospital I was required to be quarantined for a fortnight and COVID tested, again. Ten of those days were taken up with all the tests medical expertise could put me through. Plus blood transfusions to address the anemia, a platelet transfusion, oxygen (which finally stopped the coughing), lots of good food. I swear I ate red meat at every meal.
It wasn’t until the PET scan that my hematologist got a hint. An inconclusive lung biopsy was next–other than I definitely had a lymphoma. The results had to be sent to the state medical review board for confirmation.
What I’m sick with is called Intravascular diffuse large B cell lymphoma. Also known as Intravascular DLBCL. It’s rare and largely unknown how well chemo will work.
My second-opinion doctor saved my life for the present.